Online Resources


General


How to protect the first ‘CRISPR babies’ prompts ethical debate

Author: Smriti Mallapaty

Source: Nature

Link: https://www.nature.com/articles/d41586-022-00512-w

Governance


Heritable Human Genome Editing – Consensus Study Report

Author: The International Commission on the Clinical Use of Human Germline Genome Editing

Source: The US National Academies Press

Link: https://www.nationalacademies.org/our-work/international-commission-on-the-clinical-use-of-human-germline-genome-editing


Governance framework, position paper and recommendations from the WHO Expert Advisory Committee on Developing Global Standards for Governance and Oversight of Human Genome Editing

Author: WHO Expert Advisory Committee on Developing Global Standards for Governance and Oversight of Human Genome Editing

Source: WHO

General link: https://www.who.int/groups/expert-advisory-committee-on-developing-global-standards-for-governance-and-oversight-of-human-genome-editing

Recommendations link: https://www.who.int/publications/i/item/9789240030381

Governance framework link: https://www.who.int/publications/i/item/9789240030060

Position paper link: https://www.who.int/publications/i/item/9789240030404


Human Genome Editing Registry

Author: WHO Expert Advisory Committee on Developing Global Standards for Governance and Oversight of Human Genome Editing

Source: WHO

Link: https://www.cell.com/cell-stem-cell/fulltext/S1934-5909(21)00420-3?_returnURL=https://linkinghub.elsevier.com/retrieve/pii/S1934590921004203?showall=true


The American stem cell sell in 2021: U.S. businesses selling unlicensed and unproven stem cell interventions

Author: Leigh Turner

Source: Cell Stem Cell

Link: https://www.cell.com/cell-stem-cell/fulltext/S1934-5909(21)00420-3?_returnURL=https://linkinghub.elsevier.com/retrieve/pii/S1934590921004203?showall=true


Second International Summit on Human Genome Editing: Continuing the Global Discussion: Proceedings of a Workshop–in Brief

Author: Various

Source: The US National Academies Press

Link: https://www.nap.edu/read/25343/chapter/1


Human Gene Editing: Scientific, Medical and Ethical Considerations

Author: Various

Source: The US National Academies Press

Link: https://www.nationalacademies.org/our-work/human-gene-editing-scientific-medical-and-ethical-considerations


Strategic Action on Human Rights and Technologies in Biomedicine (2020-2025)

Author: Council of Europe

Source: Council of Europe

Link: https://rm.coe.int/strategic-action-plan-final-e/1680a2c5d2


Council of Europe page to work on genome editing

Author: Council of Europe

Source: Council of Europe

Link: https://www.coe.int/en/web/bioethics/embedding-human-rights-in-the-development-of-technologies-which-have-an-application-in-the-field-of-biomedicine


Various articles from the CRISPR Journal: CRISPR’s Path to the Clinic (Volume 5, Issue 1 / February 2022)

Author: Various

Editor-in-Chief: Rodolphe Barrangou

Source: The CRISPR Journal

Link:https://www.liebertpub.com/toc/crispr/5/1?utm_source=Adestra&utm_medium=email&utm_term=&utm_content=CRISPR%27s+Path+to+the+Clinic&utm_campaign=CRISPR+FP+Feb+23+2022

Human Germline and Heritable Genome Editing: The Global Policy Landscape

Author: Françoise Baylis, Marcy Darnovsky, Katie Hasson, and Timothy M. Krahn

Source: The CRISPR Journal Vo. 3, No. 5

Link: https://www.liebertpub.com/doi/10.1089/crispr.2020.0082

Q&A: Bioethicist Leigh Turner on the worrisome boom in unregulated stem cell clinics

Author: Megan Molteni

Source:  Stat News

Link: : https://www.statnews.com/2021/11/08/bioethicist-leigh-turner-boom-unregulated-stem-cell-clinics/